What we did and when we did it. Sometimes.

What we did and when we did it. Sometimes. People, places and events to remember.

Tuesday, January 21, 2014

Blog Hop: A Truth, A Tip and A Photo

Truth:  I'm not sure what truth to share here.  Do you want facts about Down syndrome?  Here's one: 30-50% of individuals with Down syndrome have a congenital heart defect.  Ben has a moderately-sized ASD - an atrial septal defect.  It's a hole between the two upper chambers of his heart, and we will probably eventually have it surgically corrected.  When Ben was born, I worried more about his heart than anything else.

Tip:  Join a local group.  When Ben was first born, I didn't know anyone near me who had a child with Down syndrome.  I found a lot of information and helpful advice on the internet, but I felt very isolated from the people around me.  Now I know several great families in my town (and even in my neighborhood!) who have children with Down syndrome.  We go to playdates and birthday parties together.  We share advice about doctors, therapists, schools, etc.  I love that my kids will grow up knowing people of all ages who have Down syndrome.

Photo:  Ben likes to help with the laundry.


  1. Right on with your tip! It's really the best thing you can do and you will learn to love this community so much more if you're involved.

    That pic is SO CUTE! Oh Ben, you are a sweet boy.