What we did and when we did it. Sometimes.

What we did and when we did it. Sometimes. People, places and events to remember.

Wednesday, January 29, 2014

Thoughts on Sign Language, Speech and Communication

Ben knows many, many signs.  I really should make a list.  I know he's got more than 100 words, but I haven't bothered writing them all down.  Maybe he has 200!  Or not.  :)

For a long time, it seemed that Ben would rarely begin a conversation himself.  He would respond to questions (ex. "Would you like something to eat?") with appropriate signs ("banana," "eat," etc.).  He clearly understood what we asked, but he rarely made the first move.

Lately, he is using sign language more effectively - and he is initiating conversations.  

When we were sitting in the living room on Friday, Ben pointed out the window and signed "outside.  slide."  Of course, it was 32 degrees, so I told him that we could not go slide outside, but I loved that he requested something that wasn't food or Signing Time.

If I'm attempting to put him in his crib (and he doesn't want to go to bed), he will point at the door to the bedroom, signing "Go.  Please.  More."  

He signs "book" when he's ready for storytime.  He will often sit with a book and sign all the words to himself.

Corrie loves to play with Ben, but she often provokes him.  They will play in some rough and tumble way, and he will communicate his displeasure by grunting.  She won't stop, and then he responds by pushing her.  Now it is not right for Ben to push or hit, but I can see how it frustrates him when he is "telling" her to stop and she continues the behavior.  We have had several conversations about how Corrie and Evan have to pay attention to the ways Ben communicates - even if he doesn't have spoken words yet.  Well, the other day, she was messing with Ben, and he grunted a couple of times, then he stopped, looked at her very deliberately, and signed emphatically, "STOP."  It was great to see him use a sign at the right time, in the right context.  And she knew what he meant.

I hope and expect that Ben will learn to talk.  He can make lots of noises (you should hear him when he "talks" on the phone) and he moves his lips into the appropriate places for sounds (Mmm, Bbb, Ppp), but he hasn't managed to connect the sounds with the lips yet.  He just got tubes in his ears, so I'm hoping that we'll see an improvement in his speech.  I don't hear him use many consonants, and I wonder if that has to do with his hearing or fluid in his ears.


Lately, I've been thinking about preschool.  Ben turns three this summer, and he will start preschool in the fall.  In my ideal world, he will attend a local church-based preschool 2-3 mornings a week, and go to the public preschool the other 2-3 mornings.  I have great confidence in Ben's ability to be part of both preschools.  His receptive language is on track for his age, so he should do fine following directions for circle time, songs, crafts, etc.

I'm not sure how preschool will work with Ben's signs.  I want him to be able to communicate with the other kids and teachers, and the best way for him to do that right now is through sign.  However, I also want him to talk.  I wonder how that transition from signing to speaking works.  We use sign and speech together, so I'm hopeful that he will do the same thing - learn to say the word while he makes the sign.  

I spoke with a mom of a teen with Down syndrome the other day.  Her child has wonderful speech, but even so, the mom said that that her daughter will sometimes get frustrated because she will think the words faster than she can say them.  

It is easy to think of speech as an indicator of intelligence, but I begin to understand that it is not.  Low muscle tone and poor motor planning can create a physical barrier between the words in the head and the words that come out of the mouth.  

I want Ben to be able to communicate in a meaningful way.  Right now, he does.



Sunday, January 26, 2014

Weekend Update (mostly Evan)

This was a big weekend for our family.  Emmett and Evan share a birthday: January 24th.  On Friday, Emmett turned 40 (!) and Evan turned 9.  

We celebrated all weekend long.  On Friday, Emmett and I saw the second Hobbit movie while the kids were at school.  A sweet girl from our church came over to hang out with Ben while we had our matinee date.  Immediately after the movie, I stopped at the elementary school to pass out cupcakes and juice boxes to Evan's class.  

Evan's party was Saturday afternoon.  Emmett managed to borrow Minecraft accounts from several friends and family members, so that Evan and 10 of his closest friends could play a massive Minecraft game in one of the university computer labs.  They had a GREAT time.  We took a short break for pizza and ice cream cake, and then they dove back into the computer game.  Afterwards, several parents hung out on campus while the kids ran around playing freeze tag.  I think this was the easiest party ever ... and now I have several elementary school boys asking me about when they can have another game day.  We might have to make this a regular event.

Emmett had his own game night on Saturday.  He played XBox online with several friends from around the country, and they played until after 1 a.m.

On Sunday, we finished the weekend by ordering Chicago-style pizza from a local restaurant.  It was yummy, but not quite as good as Lou Malnati's or Gino's East.  :)



* * * * * * * *

It's hard to believe that Evan is nine.  That sounds so grown up!  Only one more year until double digits.

Things I want to remember about Evan at this age:

(1) He loves to read!  This year, he has devoured the Percy Jackson series, the Chronicles of Prydain by Lloyd Alexander, and he's just diving into Harry Potter.  I loved reading when I was a kid (and I still do!), so his fascination with books delights me.

(2) He is a Two Square and Four Square fiend.  I don't remember playing these games at all, but they are all the rage in our neighborhood.  The kids play Two Square or Four Square at recess, and then they play in our driveway for hours after school.

(3) He still loves hot sauce.  He douses his rice, eggs, tortilla chips, etc. with Tabasco or Louisiana Hot Sauce every time he eats.  I worry about his stomach.

(4) He roots enthusiastically for the Seattle Seahawks.  We will be a divided house when the Seahawks and Broncos play in next week's Super Bowl.

I have more thoughts about the person that Evan is becoming - his commitment to training and practice (in math, sports, and more), his sense of humor, his growing friendships with kids at school and in our neighborhood, and his strong sense of justice ... but all those things are more difficult to explain.

I am thankful that I get to be his mom.